You know life's been busy when the blog that used to be your sanity saver is gathering dust!
It's April, so I suppose I should be busily posting about acceptance/awareness, etc, but we're just too busy living it. I have to say, when I have ventured into the autism-related FB world this month I've retreated just as quickly. I just don't have the energy for the vitriol out there. Maybe being able to walk away is maturity, maybe it's peace with where we're at, or maybe I'm just tired and ambivalent (the last one is most likely). I did share something on my personal timeline back on 2nd April though, so I figured I should probably put it over here too:
"It's a tough gig we have here, but these two pocket rockets of mine make it all worthwhile every day. Autism is an integral part of the boys' identities and they would not be the kids we all know and love without it. Autism is not weakness, or something to be feared or fought against, but something to be valued, nurtured and respected. Today, and this month we celebrate who our autistic friends and family are, their achievements and all that they have to offer our world.
We live in a world of very high support needs in this household. That's our reality and it's one we've embraced. Will they work one day? Who knows, probably not. Will they need support forever? Absolutely.
Does that make their lives, or mine a tragedy, or any less valuable? No way. They will impact the lives of those who are lucky enough to know them for years to come. They will teach others, they will continue to have friends, and they will make their own mark on the world, just like so many before them.
I am thankful that we are surrounded by people who get that, and who are thankful that they are part of their lives too. I am thankful that we have the most incredible school, therapists and supports who adore the boys just as they are and who see their potential. I am thankful that we have the funding to provide what they need. Most of all though I'm just thankful that I get to do life with these amazing kiddos. They make me proud every day and I wouldn't have them any other way."
I spend my days trying my best to love and nurture two incredible autistic boys so they can grow to be who they want to be, and I spend my working life doing the best I can to advocate for those who come my way (because quite frankly, our system sucks for those who can't advocate for themselves!). You know what? It's exhausting, but it's far less exhausting than living your life angry or upset because of what strangers say on social media. Real people in real life take effort- believe me, I'm an introvert, people wear me out! But those real people are so much more worth your time and effort.
This gig is hard- and "this gig" could be anything- you may be autistic, raising autistics, or an autistic raising autistics. Whichever of those you are, may this month be a time to celebrate who you/your loved ones are. I hope that whatever your take is on this month, that you have people to share it with who get it and who support you, right where you are.